Home

Jordan made leaps and bounds the last day and checked off the long list of things the doctor listed for him to go home. So they gave us approval to leave last night. He is doing really well now. We have some tubes and extra things to deal with for the next week or so, and then hopefully life will return to normal

Thursday

Sorry we haven't updated so far. It has been a difficult week. Jordan didn't really start feeling better until today. He has been feeling really sick and not himself. He has barely spoken to Brent or I, but had a turnaround when his little friend Jenna came to visit today. He was so happy to see her. He wanted her to sit in the bed with him, so she climbed up and he made sure she could see the Wiggles show. He proceeded to chatter away to her with a smile. It was the best thing that's happened all week. They have both been through a lot and have a special little friendship.

He will probably need to stay for a couple, maybe a few, more days. It has been hard to be back in the hospital again. We are hoping it is the last time ever. I felt like we spent our summer trying to distance ourselves from the hospital and medical care, and I really, really did not want to come back. But I did forget the one good thing about our experience, and it has been very good to see all of Jordan's friends from the hospital again as they have come to visit and show how much they care about him.

We'll keep you posted and then hope we will be signing off for awhile and returning to an ordinary, but very appreciated normal life.

Surgery

Jordan is out of surgery and doing fine. It went a little longer than expected, but the surgeon was hopeful that he repaired the damage from the scarring. It is likely we will be here a few more days.

Good News

Jordan's scans were clear today and we are very happy. Thanks for your prayers. We check in Sunday for surgery on Monday and will likely be there a few days.

Surgery and Scans

I hope some of you could listen to that song. It is so beautiful and written and inspired by some of those closest to us during this whole ordeal. It captures my emotions completely. Jordan has a final surgery to correct some scarring coming up in 1 1/2 weeks as well as scans. I am trying to give thanks for each day but admit that I am losing many to fear lately with all that coming up. I keep telling myself that as best as anyone knows, Jordan no longer has cancer, and each day I give in to fear is a day I miss cherishing his sweet little life. It threatens to pull me under, though. I will have to find a way to give thanks for each day. It is the only way not to lose them to fear.

The surgery in Sept. 15th and the scans are Sept. 12th

Song Link

Here's the link to the song that Brian wrote about Jordan if you want to listen to it ( I don't know how to actually make it link, so you'll have to copy it.

http://www.ilike.com/artist/Brian+Coon/track/One+Day+More

Camp

Greetings from Black Butte, Oregon. We got here yesterday from Side by Side camp (a camp sponsored by UPC for families with a child with cancer). We had an amazing time at camp. The kids had "buddies" that were incredible. Each got their own personal counselor to do whatever they wanted during the day. Jordan would ask every morning "where'd my buddy go?", then we'd go find him, they would spend hours on the slide and at the Tully's cart getting cups full of whip cream, and playing in the golf cart. The other kids had a fantastic time as well. They could barely slow down to talk to me, there were so many exciting things they had to do. It was nice for Brent and I to get some time to relax and watch the kids having such a fun time. Last year was a good time, but Jordan was doing iv antibiotics and things were very stressful for our family. So much has happened since then, it seems like an eternity ago. We are so thankful to those that provided such a great week for our family. It couldn't have been better. I think maybe this summer is doing good things for me. Life away from cancer treatment seems to good to be true. I bought wine at Costco yesterday and the checker asked me if I was 21. Now that is very funny. I laughed about that for several minutes. Anyways, we're back next Saturday. Hope you are all having a nice summer!