Day 2

We're on day 2 of the new chemo. Jordan is not pleased about being hooked up so long. He is feeling fine, and wants to run around. We're doing our best to keep him busy without busting out his line. Very challenging. Our school situation is very complicated, but we are looking to hire a nanny to help in the morning from 8:45-12:45 and maybe be flexible to come at 7 am some days. It would involve some days helping out with the kids at the Edmonds Homeschool Resource Center where they take classes and somedays being with Jordan if he is doing well. Just thought I'd put it out here since we don't have a lot of time to find someone. I'm interested in personal references the most as I don't want to have to do the screening as there is so much going on right now.l

Long Days

Jordan starts his new chemo today. He was hooked up this morning which is going to make climbing running and getting into trouble very frustrating to him. We have talked with several doctors about the upcoming (3 months or so) surgery and it is very upsetting. Brent and I are trying to absorb the sacrifices we're going to have to make for his life. It is hard to take in. We've appreciated your calls and comments. We're hanging out here till Sunday or Monday.

extended stay

Hello again family and friends. We got news from Jordan's primary cancer doctor that new chemo drugs will likey begin as soon as tomorrow or wednesday (5 more days in the hospital for this round of drug). We are now our now officially in cancer "overtime". This next round of chemo drugs is in hopes of making the tumor smaller for an eventual surgery. The news is not good concerning having to be more aggressive about getting rid of the cancer, but we are hopeful for the new chemo drugs to be more effective and that the surgery will get all of the cancer. Thanks for remaining with us in prayer and know that we continue to trust Jesus as our ultimate and Great Phyiscian. love, team busby

Waiting, waiting, waiting

Thank you so many for calling, emailing and asking about us. This has been such an emotional week, it has been hard for me to talk to people or even update this blog. I have hesitated to write this because there have been so many dashed hopes this past week, but there is still a chance that treatment could be at the end. Our doctor has been out of town for the last week and he is the expert on Jordan's kind of tumor. Apparently the results from the biopsy and scans are not as clearcut as we were told initially and he really has the final say. He is coming to see us today and I know he is concerned, but we are hoping once he reviews all the info there is the possibility of some different news. Please pray, it is so hard to be hopeful and then disappointed over and over. We have been at the hospital for the past couple days. Jordan has had unresolved pain from the biopsy and they are trying to get it figured out. We may stay another day.

Life seems at a standstill for us with the constant state of waiting, but then I realize that life is still moving on. School still starts in a couple weeks... birthday parties, soccer practice, Brent's work. It all seems to be coming at us fast.

My cousing Carin is here with Ben who is doing much better, but has been having intermittent fevers, so they are not able to go home yet. We hang out with our family, eating take-out, worrying about our sweet boys, chasing them down the hall in the cars and wishing we were back in Hawaii. Someone asked Carin where Ben was yesterday and she said, "oh he's down at Jordan's condo hanging out." Life just doesn't make sense these days.

Bad News

We just talked to the doctor and he told us the bad news that the abnormal sample showed live cancer cells. This will mean more chemotherapy and a major surgery. It is absolutely devastating news. We won't know more details till Tuesday.

still "on our knees"

thanks for continued prayers from everyone. Today has been another day of waiting and time for prayer. Finally, at 4:55pm, we spoke with dr. Pendergras and he gave us all the info he had. Again, he told us we would have to wait another day because of what they found in the pathology lab. All the samples gave no evidence of cancer. However, one sample of the tumor did not appear like the rest and this continues to cause concern. They again need to look at this sample and will do particular testing to confirm its status- whether it is an abnormal cancerous growth or leftover scar tissue and inflamation. Hopefully, we can have a definitive and praiseworthy conclusion to this ordeal tomorrow afternoon. Love, the busby's
"But those who wait on the LORD will renew their strength" Isaiah 40:31

more waiting

more waiting, as we learned today at 12:30pm that jordan's biopsy samples had been delayed in being sent to the pathology lab. Now we have been told to wait until 4pm tomorrow to have more information. i guess that means more time for prayer coverage. love, team busby