Song

We had our good friends the Coons to dinner tonight. Brian played a song he wrote about our experience with Jordan. It was absolutely beautiful. I really struggle to leave behind the whys and the fear and thank God for just today, but I'm learning that it is the only way to live.

One Day More
B. Coon 2008


Who does know just what tomorrow brings?
Sunny skies? Pouring rain?
I’ve been toiling in this God-forsaken storm.
Some things gained. Much more lost.

Do you believe in miracles?
I believe I need one now.
When all the planets line up single file.
Come what may I’ll try to find a way to pray:

I will thank you, my Lord, for one day more.
I will thank you, my Lord, for one day more. (2x)

How does God dole out his lucky charms?
Some will win. Others not.
One thing I ask you Lord is “Why? O, why? O, why?” Please, tell me why.

Yes, I believe in miracles
And I desperately need one now
So line up, planets, line up single file
Come what may I’ve got to find a way to pray:

I will thank you, my Lord, for one day more.
I will thank you, my Lord, for one day more. (2x)

Frozen by fear, for those I hold dear, white knuckles hold them near
Lord, you can give and, Lord, you can take away
So I will give thanks for this day

I will thank you, my Lord, for one day more.
I will thank you, my Lord, for one day more. (2x)





Still getting party pictures together. Will post them soon.

Party!

We had a super fun time at the party. Thank you everyone for coming! Jordan's highlights were the bubblegum, jellybeans, hokey pokey, watching his dad do the Cha Cha Slide and all his friends being there. Thank you Wayne and Cathy, Kenny and Cathy, Carmen, Brian and Liz, Eric, Andrew, Lisa, Amy and Jason, and everyone else who contributed to make it such a memorable event. Our camera is broken and so we are having to rely on the photography skills of our friends. We would really appreciate any pictures taken that night.
We'll post them as soon as we can.

No Tubes

Some pictures of a great day at the beach!! Please notice: No Tubes!!
If you are coming to the party, could you let me know on the blog, email (brent_busby@yahoo.com), or in person. No big deal if you don't rsvp and come anyways, just trying to get a general idea. Thanks.

Celebration Time!

You are all invited to a party to celebrate and praise God for Jordan's life. It will be at our church, Calvary Fellowship (23302 56th Ave. West, Mountlake Terrace, 98043) on Saturday June 21st from 6:00-9:00 pm in the YAC/Fireside rooms. Bring your dancing shoes and get ready to see Jordan cut some rug. He's got some moves even better than Brent! A light dinner will be served.

We have been overwhelmed by the support from you all. There are many of you out there we don't even know who have encouraged and prayed for us. We would love to meet you, please come!

The Beginning of the Beginning

Thank you everyone for all your kind wishes and prayers. It is the Beginning of the Beginning for us of life without cancer treatment. We will never be the same, and as I have so desperately longed to be on the "other side," we have seen too much suffering and know too many people we care about perservering with this disease, to be able to completely move on.

Jordan has many physical scars and lifelong medical issues to deal with. I have emotional scars that feel like they will take a very long time to heal. But, we emerge with a deep love, admiration, and respect for our son. We have a stronger marriage and I have an even greater knowledge that I have a very amazing husband. We have an appreciation and joy in our children that will never leave us. And, we have a testimony about the Family of God and how they have carried us through this trial. For those things we will always be grateful. Give your children a kiss in honor of Jordan and expect details of a blowout party in the near future! We love you.


P.S. No more tubes!! The NG tube and his line came out yesterday too. Pictures to come!

June 5th

We got great news today! Jordan's scans were clear. It has been a long day, and we are all very excited and tired. We are very thankful to God that his life has been spared. More to follow soon...

Tomorrow

Tomorrow is the last day of chemo for Jordan. The drug he gets takes only a few minutes to administer, but we will be there for a good part of the day for all the other necessities that accompany getting it. Many people have been wishing us well asking if we are excited. I really am not trying to be rude, I just can't talk about it or celebrate till we get good news on Thursday after all his scans. Please continue to pray for Jordan. My anxiety level is high, but Brent as always is calm.

Jordan is doing well. He is continuing to eat. It is a very unusual diet. I am trying to balance nutrition with just getting in lots of calories. Some favorites this week include spearmint altoids, chocolate chips, super spicy ethiopian food, chicken broth, turkey, smarties, milk, and McDonald's icecream cones. My goal is for him to get the tube out in a week. We'll keep you posted.