Friday

Life is really hard when you start to expect to be disappointed. It has been a rough week and very much of a blur. Jordan has had a urinary tract infection which has made him sick. We have been to the emergency room in the middle of the night, several times to the clinic, have talked to numerous doctors, and unfortunately missed the Wiggles today. It was so sad. I really wanted to tell them how much they have meant to me. That sounds so silly, but there have been so many nights that they were the only thing that distracted Jordan from how rotten he felt. I am really grateful for them. But, Jordan was not feeling well and the trip to Tacoma was not a good idea. We went to the clinic instead. Really the only good thing this week was that 2 surgical procedures were performed yesterday and went well. Jordan had his central line removed and a stint replaced in his ureter. He will get a different more temporary kind of line in a couple weeks, but we were glad to get rid of his port as he has had so many infections and it was the likely cause. Lots of medical jargon, sorry, it's all kind of complicated to explain. He's doing ok tonight, but not feeling that great. Hopefully, tomorrow will be a better day.